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‘Finding the Beauty in Abnormality’: My Diagnosis of Marfan Syndrome   
Wellness Megan Willis Wellness Megan Willis

‘Finding the Beauty in Abnormality’: My Diagnosis of Marfan Syndrome   

‘Connective tissue disorder’ and ‘aortic dissection’ became regular parts of my vocabulary. Needles, MRIs and hospital gowns became our new normal and, by the time I turned eleven, our differences became more noticeable. My sister was lucky, in a way. At a glance, you wouldn’t know there was anything wrong and her heart was by far the least affected. For my cousin and I, it was different…

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